Monthly Archives: January 2016

Depression or SEID?


Good morning, again! There is great good news, and that is that I am feeling better. Why? Two reasons, we think. First, I have been on bedrest for six months. Remember, this disease—S.E.I.D.—originally was called chronic fatigue syndrome (CFS), then … Continue reading

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Getting on Roz’s Shit List


The day dawned bright and early at 7:15 a.m. I pressed the call bell to ask for my lightbox but there was no point. This is James Square nursing home where they do not answer call bells from 7:00 a.m. … Continue reading

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Snow Day


About 75% of the nurses aides who work at James Square Nursing Home and live on the south-side have not come to work today. About 75% of the housekeeping staff, who are foreign-born, have come to work.

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SEID/ME/CFS “New Working Group includes representatives from 23 institutes . . .”


Dear Ms. Woodlen: We are responding to your email to the National Institute of Neurological Disorders and Stroke (NINDS) concerning myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). You requested an update on the National Institutes of Health’s (NIH) plans to launch a … Continue reading

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