Tag Archives: CFIDS

Centro and the Smoke Alarm


This morning I learned that in November 2013 a palliative-care nurse practitioner testified at a hearing that with my glucose level as high as it was, I would be dead within six months. Here I still am. I’ve been counted … Continue reading

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Trying to Talk to the Doctor (Part I)


Hello Dr. Myhill. I am an endocrinologist in Syracuse, NY. I received your name from a patient of mine with CFIDS. She is adamant that she cannot tolerate any medications. She has very poorly controlled type 2 diabetes mellitus. Her … Continue reading

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To Dr. Eastwood, Interim President, Upstate (Part II)


This year I went to the Joslin Diabetes Center, a new patient presenting with a glucose level of 570. I was seen by a Fellow, then the attending, Dr. Kelly. I had googled “CFIDS + glucose” and found several recent … Continue reading

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To Dr. Eastwood, Interim President, Upstate


Dear Dr. Eastwood, I apologize for the fury with which I attacked you this afternoon. The top issue was that the sidewalks on Adams Street are blocked on both sides—one side because of Upstate’s building project and now, this week, … Continue reading

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If I Can Find It, Why Can’t You?


Maureen Miller, Administrator Joslin Diabetes Center 3229 East Genesee Street Syracuse, NY 13214 Dear Ms Miller, I am writing to file a specific complaint against Tulsi Sharma and a general complaint about the Joselin process. Who is Tulsi Sharma? I … Continue reading

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ME/CFIDS/CFS


MYALGIC ENCEPHALOMYELITIS (a/k/a chronic fatigue immune dysfunction syndrome) “International Consensus Primer for Medical Practitioners” Please note that of the 26 authors listed, only seven are Americans. The world is way ahead of the U.S. on this. Click to access 2012_ICC%20primer.pdf

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Flying on the Weird Side


So I go to sleep, then wake up around midnight. I lay here and think about an ex-therapist who was a really good guy, and wonder about paying him a visit just to see—after the passage of years—who he is … Continue reading

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To Shuffle Sideways or Not


This morning I feel stronger. There is no more medically-approved word for it: I just feel stronger. Let me tell you how the week has gone. Last Saturday I went to church and knew after I got there that it … Continue reading

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The Next Questions (Part I)


Dear Dr. Klimas, I have chronic fatigue syndrome (CFS): Can you help me find a doctor who will work with me? I live in Syracuse, New York, where medical professionals are conservative and close-minded. The biggest employer is the State … Continue reading

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How Helpful are You?


But really, let’s do talk about “the scientific community.” The immunologist ordered his tests. The results included: Complement Tot Activity 60 – 144 CAE Units 177 CD8 % SUPPRES/CYTOTOXIC 14 – 37 % 12 CD4/CD8 Ratio 1.0 – 4.0 5.0 … Continue reading

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