Tag Archives: disability rights

Recovery, Chronic Fatigue and Depression


When I was 14 years old, on a Friday afternoon I went to Nelda Jane’s house for the weekend.  She wanted to go horseback riding and swimming; I wanted to go to sleep or sit under a tree and read.  … Continue reading

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It’s All About Power


It is my right, as an American citizen who is disabled, to use a power wheelchair. The Iroquois Nursing Home, where I currently reside, has made a policy that no resident may use a power chair. The policy is clearly … Continue reading

Posted in activism, disability rights, Medical care, Nursing home, Power, power wheelchairs, Powerlessness | Tagged , , , , , | Leave a comment

Starting One Week Ago—Check It Out


The NYS Commission on Quality of Care and Advocacy for Persons with Disabilities (CQC) has been supplanted by the NYS Justice Center for the Protection of People with Special Needs.  http://www.justicecenter.ny.gov/ Governor Cuomo Announces Opening of the Justice Center for the Protection … Continue reading

Posted in activism, advocacy, Depression, disability, disability rights, Government Services, Inpatient psychiatry, Medical care, Mental Illness & Health, Power, Powerlessness, Values | Tagged , , , , , , , , , , , , , | 2 Comments

Greetings, Gentlefolk


“I have spent the past twelve days in St. Joseph’s Hospital on inpatient psychiatry (Unit 3-6) with Dr. Roger Levine attending. I am now going to file complaints with the New York State Dept. of Health, NYS Office of Mental Health, … Continue reading

Posted in activism, advocacy, American medical industry, Death, Depression, disability, disability rights, drugs, God, Government Services, Inpatient psychiatry, Medicaid, Medical care, Medicare, Mental Illness & Health, Pharmaceuticals, physician, Poverty, Power, Powerlessness, Spirituality, Values | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment

The Bullies at Centro


Linda McKeown, the manager of Call-a-Bus, used bullying as her management style and she passed it down to her staff.  Herewith my letter to her on October 18, 2004: Dear Linda,             I have spoken with Sharon Keener, manager of … Continue reading

Posted in activism, advocacy, disability, disability rights, Onondaga County, Poverty, Power, power wheelchairs, Powerlessness, Values | Tagged , , , , , , , , , , , , | 2 Comments

Skip Two Steps and Listen


What follows is a treatise on governance that is relevant to all those who govern and those who are governed. It grew out of a meeting a week ago between county officials and people with disabilities. The county had established … Continue reading

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The Right to Nap


 “Can you provide me with the details of your complaint at the property so that I may get in touch with the Management Agent.”  HUD Buffalo agent Sure.  Last Thursday, August 23, I was in bed, asleep, and only half-dressed, … Continue reading

Posted in activism, advocacy, disability rights, Government Services, Housing, Poverty, Power | Tagged , , , , , , , , , , , | Leave a comment

Who’s Afraid of the Idiots in Government?


So the new home health aide hours that Onondaga County has authorized—“effective immediately,” which was on Monday, August 20—are to go on the call-out list, which consists of about eight agencies that have contracted to serve poor people.  John, the … Continue reading

Posted in activism, advocacy, American medical industry, disability, disability rights, Government Services, Health Care, Humor, Medicaid, Medical care, Poverty, Power, Values | Tagged , , , , , , , , , , , , , , , , , , , , , | 1 Comment

Curing Depression, and Ain’t Payback a Bitch?


Several hundred of you have been following my problem with the Visiting Nurse Association (VNA), so let’s use it as a teaching moment.  Follow the bouncing activist to learn how to effectively complain. I wrote up the story of how the … Continue reading

Posted in activism, advocacy, American medical industry, Depression, disability, Fraud, Government Services, Health Care, Medicaid, Medical care, Power | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

Syracuse Police Bully Two Elderly Disabled Citizens


My aide and I were returning from the drugstore and coming down Crouse Avenue around 4:45 p.m., Monday 30 July 2012, when we saw police cars and a gathering of people at the corner of Crouse and Madison.  My aide … Continue reading

Posted in activism, advocacy, disability, disability rights, Government Services, Medical care, power wheelchairs, Powerlessness, Values | Tagged , , , , , , , , , , , , | 2 Comments